Background
The National Disability Knowledge Forum (NDKF) is a national Inuit-led organization dedicated to advancing disability research, knowledge exchange, and policy development across Canada.
The Forum was established in response to a longstanding gap within disability research, policy, and decision-making: the limited representation of Inuit perspectives, priorities, and lived experiences within national disability conversations. While disability has become increasingly recognized within human rights frameworks, legislation, and public policy, Inuit experiences have often remained underrepresented within the research and systems that shape these discussions.
The Forum recognizes that disability is not experienced in the same way across all communities. Geography, language, culture, relationships, access to services, housing, transportation, and the ongoing impacts of colonialism all influence how disability is understood and experienced across Inuit Nunangat. Yet much of the disability knowledge that informs policy and practice in Canada has been developed through frameworks that may not fully reflect these realities.

Founded in Iqaluit, Nunavut, the Forum serves Inuit communities across Inuit Nunangat, including Nunavut, Nunavik, Nunatsiavut, and the Inuvialuit Settlement Region, while contributing to disability conversations nationally.

The Forum emerged from years of disability research, community engagement, and advocacy led by Nunavummi Disabilities Makinnasuaqtiit Society (NDMS).
Through this work, a clear need emerged for a dedicated national organization focused specifically on Inuit disability knowledge, research, and policy development. The National Disability Knowledge Forum was officially launched in September 2025 and federally incorporated in January 2026. While the Forum continues to collaborate closely with NDMS and many of its partners, it operates independently with its own mandate, governance, and strategic priorities.
Today, the Forum serves as a national platform for research, knowledge sharing, policy dialogue, and collaboration that centers Inuit perspectives, lived experience, and community priorities.
About disability
Disability exists in Inuit communities, as it does in all communities around the world. Inuit live with physical, sensory, intellectual, developmental, mental health, and other disabilities, and many Inuit families provide care and support to loved ones with disabilities.
Today, disability is often understood through legal, medical, social, and human rights frameworks. These frameworks have played an important role in advancing accessibility, protecting rights, reducing discrimination, and creating opportunities for inclusion. They influence many aspects of everyday life, including access to education, employment supports, housing programs, disability benefits, healthcare services, accessibility legislation, and human rights protections.
However, these systems also rely on specific definitions and assumptions about disability. In many cases, individuals must identify themselves as having a disability, receive a diagnosis, or meet eligibility criteria in order to access programs, services, or supports. These frameworks shape how disability is discussed and understood across Canada, including within Inuit communities.
Historically, Inuit societies were built around relationships, interdependence, collective responsibility, and contribution to community life. Individuals were valued for the knowledge, skills, strengths, and roles they brought to their families and communities. While people undoubtedly experienced illness, injury, impairment, differences in functioning, and changing abilities, these experiences were often understood within the broader context of family, relationships, and community responsibilities rather than through formal diagnostic labels.
Inuit communities developed ways of supporting one another based on cooperation, adaptability, and shared responsibility. Community members contributed in different ways depending on their strengths, circumstances, and abilities. This does not mean disability did not exist. Rather, it suggests that the ways disability was understood, discussed, and responded to may not always correspond directly to contemporary Western frameworks. Understanding these distinctions is important because they continue to influence how disability is perceived and experienced today.
Many Inuit today navigate multiple ways of understanding disability at the same time.
For instance, Western definitions of disability are often necessary to access supports, services, accommodations, benefits, and legal protections. These systems can provide important resources and opportunities that improve quality of life. However, these definitions may not always reflect how individuals, families, or communities understand their own experiences. This can create tension. People may need to adopt terminology or labels required by programs and policies, even when those terms do not fully capture their identities, experiences, or cultural understandings. The Forum recognizes that these realities are complex and that there is no single Inuit perspective on disability. Experiences differ across regions, generations, communities, families, and individuals.
Any discussion of disability in Inuit communities must also acknowledge the ongoing impacts of colonization. Residential schools, forced relocations, family separations, systemic discrimination, housing shortages, food insecurity, barriers to healthcare, and other colonial policies have had lasting effects on Inuit communities and wellbeing.
These experiences continue to shape physical, emotional, mental, social, and community health across Inuit Nunangat and urban Inuit communities. Contemporary conversations about disability, mental health, accessibility, caregiving, and inclusion cannot be separated from these broader social, historical, and political realities. Understanding disability in Inuit contexts therefore requires attention not only to individual experiences, but also to the systems and conditions that shape those experiences.
Why this matters
Policies, programs, legislation, and research are most effective when they reflect the realities of the people they are intended to serve. When Inuit perspectives are absent from disability-related conversations, there is a risk that policies and programs will fail to account for cultural context, community priorities, geographic realities, and Inuit ways of knowing. The Forum works to create space for Inuit voices, experiences, and knowledge within disability research, policy development, and decision-making. We believe Inuit perspectives are not an addition to disability conversations; they are essential to understanding disability in Canada.
Our commitment
The National Disability Knowledge Forum is committed to advancing conversations about disability that are grounded in respect, collaboration, lived experience, and Inuit knowledge.
We recognize that disability is both a lived reality and a policy issue. We recognize the importance of human rights protections, accessibility initiatives, and disability supports. We also recognize the importance of creating space for Inuit communities to define priorities, share experiences, and contribute to the development of the policies and systems that affect their lives.
Our goal is not to replace one understanding of disability with another. Rather, it is to create opportunities for dialogue, learning, and collaboration that strengthen disability knowledge and ensure Inuit perspectives are represented within national conversations.
Our work reflects a belief that disability knowledge should not be developed about communities, but alongside them.
As the Forum grows, we look forward to working alongside Inuit communities, organizations, Elders, researchers, policymakers, and people with lived experience to continue exploring these important conversations.
Objectives
The National Disability Knowledge Forum works to strengthen disability knowledge and ensure Inuit perspectives are represented in the systems, policies, and conversations that affect Inuit communities.

The Forum’s objectives are to:
- Advance Inuit-led disability research and knowledge development.
- Strengthen understanding of disability within Inuit and Northern contexts.
- Support community-driven and lived-experience-informed approaches to research and policy development.
- Promote ethical engagement practices between researchers, governments, organizations, and Inuit communities.
- Increase the representation of Inuit perspectives within national disability research, policy, and accessibility initiatives.
- Facilitate knowledge exchange between communities, researchers, policymakers, organizations, and people with lived experience.
- Develop and share accessible resources, publications, and position statements.
- Support evidence-informed decision-making that reflects Inuit priorities and realities.
- Foster collaboration and partnerships that contribute to more inclusive systems and communities.
- Support the next generation of Inuit disability researchers, advocates, and leaders.
- Contribute to long-term improvements in accessibility, inclusion, and disability-related outcomes across Inuit Nunangat and beyond.
Values and commitments
The work of the National Disability Knowledge Forum is guided by Inuit societal values and by a commitment to respectful, community-centered approaches to research, knowledge sharing, and engagement.
Community knowledge
The Forum recognizes that valuable knowledge exists within communities. The experiences of people with disabilities, families, caregivers, Elders, and community members are essential sources of insight and expertise.
Respect
Respect forms the foundation of the Forum’s work. We are committed to listening carefully, building trust, and creating space for diverse perspectives and experiences.
Collaboration
Strong partnerships are essential to meaningful change. The Forum believes that communities, researchers, organizations, governments, and people with lived experience all have important contributions to make in strengthening disability knowledge and improving outcomes.
Accessibility
Knowledge should be accessible to everyone. The Forum is committed to sharing information in ways that are clear, inclusive, and accessible to diverse audiences.
Accountability
The Forum is accountable to the communities, partners, and individuals who contribute to its work. We are committed to transparency, ethical engagement, and ensuring community priorities remain central to our activities.
Inuit societal values
The Forum is guided by Inuit societal values, including working together for a common purpose, fostering respectful relationships, sharing knowledge, and supporting collective wellbeing. These principles shape how we conduct research, build partnerships, engage with communities, and share knowledge.
Lived experience leadership
The Forum believes lived experience is expertise. People with lived experience should be meaningfully involved in research, policy development, knowledge creation, and decision-making processes that affect their lives and communities.
Looking forward
The Forum is committed to helping build a future where Inuit perspectives are recognized as essential contributions to disability research, policy, accessibility, and systems development across Canada.